Support plays a very important part in adjusting to living with Pelvic Radiation Disease (PRD). We have a number of support services available that are free to access for people living with symptoms of PRD.

The support we provide does not replace professional care and we are unable to offer medical advice or connect you with healthcare professionals directly. Please seek advice from your doctor in the first instance to discuss concerns that your symptoms could be related to your previous radiotherapy treatment, regardless of how long ago you received it.

 

Have you been signposted to us or found us after doing your own research? Are your symptoms pointing to you having Pelvic Radiation Disease? Our Let’s Talk programme is for people who have had radiotherapy and would to understand more about PRD, even if it has been years or even decades since treatment. Our Let’s Talk programme is currently undergoing further development, watch this space.

 

Our Out and About Toolkit contains information with practical tips to help you to self-manage PRD as well as handy tools such like a RADAR key and a ‘just can’t wait’ toilet card to make venturing out less daunting.

 

 

Our friendly Online Community – a safe and supportive space for people living with Pelvic Radiation Disease (PRD) to share their experiences, ask questions, and learn from others.

 

 

Our monthly Chat Together peer support group where people can share their experience of PRD in a supportive and informal group.

 

 

 

Find information on our Financial and social support page including help with: prescriptions costs,  water bills and benefits you may be entitled to.

 

 

 

Get in touch 

  • Your Feedback Matters please tell us any thoughts, suggestions, or concerns you may have about the PRDA.
  • Please get in touch if you have any questions.
  • Share your PRD story, whether it is you or someone close to you who is affected by PRD.

Other support services

  • NHS 111 – free NHS helpline service for urgent medical concerns. Staffed 24 hours a day, 7 days a week by a team of fully trained advisers.
  • Maggie’s are able to offer support to help manage worries, anxiety, and distress that you may experience following a cancer diagnosis and treatment.  You can contact  Maggie’s on 0300 123 1801 or via their email: enquires@maggies.org. Alternatively, there are 24 physical Maggie’s centres throughout the UK- no appointment is needed. You can simply pop in and meet with one of the team. 
  • Maggie’s Cambridge offers specific support for those affected by PRD and can be contacted on 01223 249220 or via email: cambridge@maggiescentres.org 
  • Macmillan provide physical, emotional and financial support to help you live life as fully as you can.
  • Jo’s Cervical Cancer Trust is the UK’s leading cervical cancer charity, offers online and face to face support for people affected by cervical cancer.

 

PRDA is a member of Helplines Partnership – this means we have met the relevant criteria to become part of the membership.

 

All communications regarding support are governed by our Confidentiality, Privacy and GDPR policies.  See all our policies here.

Modified: 10th April 2024

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