Proposals are invited from self-employed individuals with experience in setting up marketing and fundraising for a small charity. PRDA supports cancer patients suffering from debilitating consequences of pelvic radiotherapy by providing information and advice to patients and health professionals about possible effects of pelvic radiotherapy.
This is a part-time, home-based role but the successful candidate must be within easy reach of SW London, and able to travel in this area.
Indicative budget £15,000 including VAT and expenses – spread across 6 to 9 months, starting Sept/Oct 2018.
This is an exciting opportunity for an energetic self-starter to help PRDA in establishing itself as the main UK charity for people experiencing debilitating and life-changing long-term side effects of radiotherapy for pelvic cancers.
Objectives of this role:
- raise awareness of PRDA with cancer patients and their families
- raise awareness of PRDA with a range of health professionals
- increase PRDA’s profile in the media
- organise fundraising activities including one or more events.
We need someone with great communication and social media skills and a track record in small charity or PTA fundraising, media work, events and/or marketing, who can work on their own initiative and will deliver results in a short time frame. Knowledge of the cancer/medical charity sector desirable.
Following radiotherapy, primarily for prostate, bowel, cervical and womb cancers, patients can develop Pelvic Radiation Disease (PRD) – a debilitating and complex group of long-lasting symptoms, including serious problems with bladder and bowel control, sexual health, fertility, mobility and related mental health problems. In the worst cases, patients are unable to leave their homes as a result of unpredictable continence issues. This humiliating and embarrassing disease needs to be taken seriously.
There are many tens of thousands of people with PRD in the UK that PRDA would like to reach.
We are a small, young UK charity and we aim to have an impact by:
- Providing and facilitating direct support and information to people affected by, or at risk of, pelvic radiation disease (PRD);
- Providing a voice for people affected by PRD;
- Influencing decision-makers to achieve adequate, dedicated funding for PRD services across the UK including the adoption of a treatment tariff by NHS England;
- Working with charity, professional organisations, NHS and other partners to improve health and social services for people affected by PRD;
- Working with charity and professional organisation partners to improve professional awareness and education on the prevention and treatment of PRD.
People who are given support to cope with PRD and receive effective treatment often say they have ‘got their life back’. From being almost house-bound and economically inactive, people are able to return to work, have a social life, take holidays and feel human again.
The Pelvic Radiation Disease Association (PRDA) has been a registered charity since 2012. It is run by 5 volunteer trustees and a part-time paid administrator. Our key achievements to date include:
- Patient support: Website prda.org.uk and information leaflets; Telephone helpline; Facebook Group; Support group meetings.
- Professional engagement: Database of professionals who are willing to see people with PRD-related bowel and bladder problems; Providing speakers and representation at a wide range of conferences; Articles in professional publications.
- Partnership-working with major cancer charities and professional organisations.
We currently have very limited funds and urgently need to increase income through fundraising.
How to Apply
Please send a CV and Cover letter to firstname.lastname@example.org Closing date Sunday 24th June 2018. Interviews late July/early August in London. Please indicate your availability for interview in the period 16th July to 10th August on your covering letter.