[3rd March 2025]
This Lymphoedema Awareness we’re highlighting the impact of lymphoedema after pelvic radiotherapy and the importance of early recognition and management. Lymphoedema awareness week 2025 runs from Monday 3rd to Friday 7th March.
Radiotherapy and lymphoedema risk
It isn’t possible to predict who will develop lymphoedema, but radiotherapy increases the risk. While the risk is lifelong, most cases develop within the first two years after treatment. Being aware of the symptoms and taking steps to reduce your risk is important. The Lymphoedema Support Network offers useful information for those at risk.
To reduce your risk of developing lymphoedema, try to:
✔ Maintain a healthy weight
✔ Eat a balanced diet
✔ Take care of your skin to prevent damage
✔ Stay physically active
Be aware of the symptoms
Regular self-checks help you spot early signs of lymphoedema so action can be taken quickly. Here are the symptoms to look out for:
| Lymphoedema symptoms |
| Swelling in legs, scrotum, penis, or genital area |
| Feeling of discomfort, heaviness |
| Skin tightness or stiffness |
| Aching or pain |
| Fluid leaking through skin |
| Difficulty passing urine |
| Red hot area/rash or ‘flu-like, symptoms that may indicate cellulitis |
| Skin changes, growths, folds, thickening or dimpled appearance (similar to orange peel) |
If you notice any of these symptoms, see your healthcare team as soon as possible to help prevent them from worsening. It’s also important to rule out cancer recurrence—there is no justification for a ‘wait and see’ approach. You can also access self-assessment forms* for lower limb and genital oedema:
*These self-assessment forms are available in male and female versions, based on anatomical differences that can affect symptoms and treatment. We recognise that gender identity is diverse, and this terminology may not fully reflect everyone’s experience.
The Pelvic Radiation Disease Best Practice Pathway provides detailed information you can share with your healthcare team [page 84].
Real-life Stories
Corinne shares a candid account of her life with Pelvic Radiation Disease (PRD), highlighting its challenges and, in particular, the impact of lymphoedema on her daily life. She describes how this condition affects her mobility, comfort, and overall well-being, bringing additional obstacles to navigate.
#EveryStoryEveryVoice