[3rd July 2025]

We often hear from people who tell us they weren’t made aware of the potential late effects of pelvic radiotherapy before treatment – and that this lack of information has had a lasting impact on their lives. Many people treated years ago have shared how strongly they feel about the importance of informed consent — and we completely agree that it is essential.

Advancements in Radiotherapy Consent

In 2021, the Royal College of Radiologists (RCR) introduced national radiotherapy consent forms in the UK. These forms were developed to make the consent process clearer, more consistent, and more comprehensive for patients. The forms are:

  • Tailored to each specific cancer type and treatment

  • Inclusive of a wide range of side effects and late effects

  • Transparent about how likely or frequent these effects might be

This has been a major step forward in improving communication and ensuring patients can make informed choices about their treatment – including understanding the risks of long-term effects.

You can find more information and download the consent forms on the RCR website here: Royal College of Radiologists National Radiotherapy Consent Forms

We still hear: “I wasn’t told” – and that matters

Even though the new consent process has been in place for several years, it’s still common for people to contact us not realising it exists – or feeling distressed that they weren’t given this information when they were treated in the past.

We want to acknowledge that this progress does not erase past experiences. Many people did not receive detailed information about late effects, and the impact of that can be profound. Your experience is valid, and your voice matters.

At the same time, it’s important to raise awareness of the improvements that have been made – and to support continued efforts to ensure every patient receives the information they need.

Raising awareness, together

We’ll continue to advocate for better communication, support those long-term effects of pelvic radiotherapy, and help raise awareness so more people know what to expect – and where to turn for help.

  • If you’re living with Pelvic Radiation Disease (PRD) and want to share your story, please visit our Share Your Experience of PRD page.
  • If you’d prefer to give us a brief quote or comment, our Have Your Say page is a great place to do so.
  • If you’re living with PRD and would like support, please visit our Support page to find out how we can help.