Information
The information we provide does not replace professional care. We provide an information service only and are unable to offer medical advice or connect you with healthcare professionals directly. Please seek advice from your doctor in the first instance to discuss concerns that your symptoms could be related to your previous radiotherapy treatment, regardless of how long ago you received it.
- The Pelvic Radiation Disease Association (PRDA) has compiled a list of clinical guidance and information on Pelvic Radiation Disease for professionals and patients, which includes external links.
- Our Resources and Documents page gives information about PRD and ways to self manage symptoms.
- A range of talks taken from our 2021 Annual Conference give information on living with PRD.
- Real life stories from people living with PRD
Support for you
Support plays a very important part in adjusting to living with the after-effects of cancer treatment. It is necessary not just for patients but for those close to them too. Support covers access to information, identification of appropriate medical help, financial advice and contact with others who have shared experiences.
- Our friendly Online Community – a safe and supportive space for people living with Pelvic Radiation Disease (PRD) to share their experiences, ask questions, and learn from others.
- Our monthly Chat Together support group where people can share their experience of PRD in a supportive and informal group.
- Our Out and About Tookit – practical tips to help self-manage PRD as well as handy tools such like a RADAR key and toilet card to make venturing out less daunting.
Other information and support services
- NHS 111 – free NHS helpline service for urgent medical concerns. Staffed 24 hours a day, 7 days a week by a team of fully trained advisers.
- The Practical Management of Gastrointestinal Symptoms of Pelvic Radiation Disease (J Andreyev et al, 2014). This is the most comprehensive guide to managing gastrointestinal symptoms of PRD.
- Maggie’s are able to offer support to help manage worries, anxiety, and distress that you may experience following a cancer diagnosis and treatment. You can contact Maggie’s on 0300 123 1801 or via their email: enquires@maggies.org. Alternatively, there are 24 physical Maggie’s centres throughout the UK- no appointment is needed. You can simply pop in and meet with one of the team.
- Maggie’s Cambridge offers specific support for those affected by PRD and can be contacted on 01223 249220 or via email: cambridge@maggiescentres.org.
- Macmillan provide physical, emotional and financial support to help you live life as fully as you can.
- Jo’s Cervical Cancer Trust The UK’s Leading Cervical Cancer Charity.
- Guts UK pioneer research to help people affected by diseases of the gut, liver & pancreas.
- Action Radiotherapy campaigns for access to the best radiotherapy for all.
- Feature on PRDA in the Society of Radiographers website.
- Blog about PRDA on the Cancer Care Map website.
- Feature on PRDA on the RadPro365 website for radiotherapy professionals.
- ‘Cancer Care Map’ is a tool to find support in your area from Dimbleby Cancer Care.
| PRDA is a member of Helplines Partnership – this means we have met the relevant criteria to become part of the membership. |  |
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Modified: 24th June 2022